LGS and Dravet Syndrome: Experienced Caregivers Are Still Searching.

KEEP learned from caregivers representing 57 people with LGS or Dravet syndrome between April and June 2026. These are experienced caregivers still searching for answers: 98% have tried multiple medications, yet 74% say seizures remain poorly controlled and 46% feel they have run out of options. Caregiving runs around the clock, and 72% are very interested in new options. The report shows how to meet caregivers as experienced partners.