IgA Nephropathy: Ready to Learn, Largely Outside Formal Support.

KEEP heard from 30 people with confirmed IgA nephropathy in July and August 2026. Monitoring is common but control is not: 57% track kidney function regularly, yet 53% describe their condition as poorly or not controlled. Every patient expressed interest in other therapies, but 87% are not engaged with an advocacy group, so formal channels miss most of this audience. The report shows how to reach a motivated audience with credible next steps.